Perceptions of lymphoedema treatment in patients with breast cancer - a patient perspective.
Identifieur interne : 001A02 ( Main/Exploration ); précédent : 001A01; suivant : 001A03Perceptions of lymphoedema treatment in patients with breast cancer - a patient perspective.
Auteurs : Katarina Karlsson [Suède] ; Gabriele Biguet ; Karin Johansson ; Lena Nilsson-WikmarSource :
- Scandinavian journal of caring sciences [ 1471-6712 ] ; 2015.
Descripteurs français
- KwdFr :
- MESH :
- psychologie : Lymphoedème.
- Adulte, Adulte d'âge moyen, Femelle, Humains, Lymphoedème, Sujet âgé, Suède, Tumeurs du sein.
English descriptors
- KwdEn :
- MESH :
- complications : Breast Neoplasms, Lymphedema.
- psychology : Lymphedema.
- therapy : Lymphedema.
- Adult, Aged, Female, Humans, Middle Aged, Sweden.
Abstract
Lymphoedema after breast cancer surgery is a chronic condition. Lymphoedema treatment consists of information/advice, compression, physical exercise, skin care, and manual lymph drainage. Little is known about how patients experience, adapt, and respond to lymphoedema treatment. Thus, the purpose of the study was to investigate and describe women's perceptions of lymphoedema treatment after breast cancer surgery. Sixteen women with breast-cancer-related lymphoedema, recruited from four hospitals and two rehabilitation clinics, participated in the study. Semi-structured interviews were conducted and analysed using a phenomenographic method. Five qualitatively different categories of description could be identified: uncertainty, disappointment, guilt and shame, safety, and autonomy. The categories could be described based on a two-dimensional structure: the patients role (internal vs. external locus of control) and an understanding of lymphoedema as a chronic disease or a burden. The study has provided a deeper understanding of different ways in which patients perceive and respond to lymphoedema treatment. The present findings enable the lymphoedema therapist to individualise treatment and counselling based on each patient's approach to the patient role, ability to take responsibility for treatment, and acceptance of lymphoedema as a chronic disease.
DOI: 10.1111/scs.12138
PubMed: 24712541
Affiliations:
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Department of Neurobiology, Care Sciences and Society, Divison of Physiotherapy, Karolinska Institutet, Stockholm, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Section of Oncological Rehabilitation, Oncology Clinic, Karolinska University Hospital, Solna, Sweden; Department of Neurobiology, Care Sciences and Society, Divison of Physiotherapy, Karolinska Institutet, Stockholm</wicri:regionArea><placeName><settlement type="city">Stockholm</settlement><region nuts="2">Svealand</region></placeName></affiliation></author><author><name sortKey="Biguet, Gabriele" sort="Biguet, Gabriele" uniqKey="Biguet G" first="Gabriele" last="Biguet">Gabriele Biguet</name></author><author><name sortKey="Johansson, Karin" sort="Johansson, Karin" uniqKey="Johansson K" first="Karin" last="Johansson">Karin Johansson</name></author><author><name sortKey="Nilsson Wikmar, Lena" sort="Nilsson Wikmar, Lena" uniqKey="Nilsson Wikmar L" first="Lena" last="Nilsson-Wikmar">Lena Nilsson-Wikmar</name></author></analytic><series><title level="j">Scandinavian journal of caring sciences</title><idno type="eISSN">1471-6712</idno><imprint><date when="2015" type="published">2015</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult</term><term>Aged</term><term>Breast Neoplasms (complications)</term><term>Female</term><term>Humans</term><term>Lymphedema (complications)</term><term>Lymphedema (psychology)</term><term>Lymphedema (therapy)</term><term>Middle Aged</term><term>Sweden</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adulte</term><term>Adulte d'âge moyen</term><term>Femelle</term><term>Humains</term><term>Lymphoedème ()</term><term>Lymphoedème (psychologie)</term><term>Sujet âgé</term><term>Suède</term><term>Tumeurs du sein ()</term></keywords><keywords scheme="MESH" qualifier="complications" xml:lang="en"><term>Breast Neoplasms</term><term>Lymphedema</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Lymphoedème</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Lymphedema</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Lymphedema</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adult</term><term>Aged</term><term>Female</term><term>Humans</term><term>Middle Aged</term><term>Sweden</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adulte</term><term>Adulte d'âge moyen</term><term>Femelle</term><term>Humains</term><term>Lymphoedème</term><term>Sujet âgé</term><term>Suède</term><term>Tumeurs du sein</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Lymphoedema after breast cancer surgery is a chronic condition. Lymphoedema treatment consists of information/advice, compression, physical exercise, skin care, and manual lymph drainage. Little is known about how patients experience, adapt, and respond to lymphoedema treatment. Thus, the purpose of the study was to investigate and describe women's perceptions of lymphoedema treatment after breast cancer surgery. Sixteen women with breast-cancer-related lymphoedema, recruited from four hospitals and two rehabilitation clinics, participated in the study. Semi-structured interviews were conducted and analysed using a phenomenographic method. Five qualitatively different categories of description could be identified: uncertainty, disappointment, guilt and shame, safety, and autonomy. The categories could be described based on a two-dimensional structure: the patients role (internal vs. external locus of control) and an understanding of lymphoedema as a chronic disease or a burden. The study has provided a deeper understanding of different ways in which patients perceive and respond to lymphoedema treatment. The present findings enable the lymphoedema therapist to individualise treatment and counselling based on each patient's approach to the patient role, ability to take responsibility for treatment, and acceptance of lymphoedema as a chronic disease.</div></front></TEI><affiliations><list><country><li>Suède</li></country><region><li>Svealand</li></region><settlement><li>Stockholm</li></settlement></list><tree><noCountry><name sortKey="Biguet, Gabriele" sort="Biguet, Gabriele" uniqKey="Biguet G" first="Gabriele" last="Biguet">Gabriele Biguet</name><name sortKey="Johansson, Karin" sort="Johansson, Karin" uniqKey="Johansson K" first="Karin" last="Johansson">Karin Johansson</name><name sortKey="Nilsson Wikmar, Lena" sort="Nilsson Wikmar, Lena" uniqKey="Nilsson Wikmar L" first="Lena" last="Nilsson-Wikmar">Lena Nilsson-Wikmar</name></noCountry><country name="Suède"><region name="Svealand"><name sortKey="Karlsson, Katarina" sort="Karlsson, Katarina" uniqKey="Karlsson K" first="Katarina" last="Karlsson">Katarina Karlsson</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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